I’ve had a lot of therapy appointments this week. On Tuesday, I met with Melissa (speech) and Mark (my counselor), and yesterday I met with Karen (OT, or occupational therapy). I’ve haven’t done very well in them, I don’t think; of course, they NEVER tell you that you’re doing poorly, so who knows.
I haven’t done my homework. Well, I actually DID for Melissa; she gave me lists of categories (e.g. “Girls’ Names Beginning with S”) and I had to think of as many as I could in a minute. Some of them I did OK on, but names? Starting with S? I got “Samantha” and that was it. I gave the same categories to Ben, and he was able to name quite a few: Sarah, Sandra, Shelley, etc. “How’d you do that?” I asked. He explained his strategy: pair “S” up with vowels, like “Sa”, and then try and name names in that category. “Ohhh …” I said. “Why didn’t *I* think of that?” Melissa always asks me what I’ve read, and though I actually DID read for Tuesday’s session, I didn’t write a summary — which, I’m coming to discover, is problematic. I’m reading “Running with Scissors”, upon which the movie is based; I actually remember what I’ve read (at least relative to before), but explaining it is a whole ‘nother ballgame. I don’t know why, but my aphasia causes me to clam up; I CANNOT tell you what the book’s about. This is incredibly frustrating … I KNOW what it’s about, but summarizing it is SO difficult.
I’ve been tired lately; I haven’t been getting enough sleep; I’m waking up early. Why is this, you ask? It could be because I have to get up and do stuff in the morning, but if you ask me that’s a petty excuse. Catching a bus at 11 am is, indeed, important, but it doesn’t mean that I have to wake up at 8, for goodness’ sake. I suspect that depression is the culprit. Which sucks. Antidepressants are very good at un-depressing you, in my experience; however, the side effects SUCK. I really don’t want to start puking again, for instance. However, for the sake of my sleep, my therapy work, and Ben (poor Ben!), I think I’m going to have to try something else. Again. Sigh. :(
Anyway, yesterday I had an appointment with Karen — my last one, apparantly. “I CAN’T WRITE YET, THOUGH!!!” I protested. Karen said that she was sorry my handwriting hadn’t improved [enough], but that I need to practice every day, which I haven’t been doing. GRRR. But she also gave me a pre-driving evaluation, which I passed!!! Hooray! She gave me instructions not to drive when I’m tired or emotionaly wound up, but said that driving to and from therapy, for instance, would be OK. :) This is fantastic news to me – for one, it’s annoying to have people tell me that I shouldn’t drive, and two, taking is bus is growing tiring. I walked a mile yesterday to get from the bus stop to therapy and then from therapy to the hospital. A mile isn’t that much, but I haven’t exercised in almost a year, so right now it feels like climbing Everest.
This morning I had a meeting with Dr. Smith, my neurologist in Denver. I made it there without puking (yay!). It was, however, kind of a disappointing meeting. He examined me (the typical neuro exam; I passed with flying colors, once again) and he pronounced me fit as a fiddle. I didn’t say anything; thank goodness for Ben.
“She’s got an energy reserve 10% the size of yours or mine,” he said. “She looks good now, but she’ll go home and literally sit on the couch and watch TV for the rest of the afternoon. She’s very good at ‘fooling’ doctors and therapists she meets for an hour at a time.” At that point (thank you, depression!) I started to cry, but I was so grateful to Ben for speaking up. Dr. Smith said that I could stop the coumadin in March, which I was very happy about; however, he didn’t say anything about “closing the PFO may not solve your problem,” which I thought would be one of the main topics of our discussion. He scared Ben into thinking that was the case when he talked to him on the phone in October. [There was a snowstorm then, which is why I didn't get to go meet with him.] I pressed for more information.
“What about vasculitis?” I asked. He eventually said that vasculitis is very difficult to diagnose, and so basically he wouldn’t bother trying. This does not sound very reassuring. I was prepared to have him recommend a brain bioposy — not fun, for sure, but a heck of a lot safer. He did concede that I should have another MRI. If there’s any evidence of something “new” on the MRI (a stroke, but one that didn’t cause any noticable new symptoms), he’ll order an angiogram (when they stick a catheter up your leg to inject dye into your brain, then do an MRI), and then (I presume) a brain biopsy. I suspect that my initial MRI is going to turn out to be negative, though.
So, for now, I’m going to be very happy about the possibility of getting off coumadin, but also slighty nervous. Am I really all better?