Archive for December, 2005

Our Holiday Season

Today, I bid the Brantleys off on the Nederland bus … they’re troopers! It wasn’t my idea to have them take the bus; you can thank Ben for that one!

We had a good visit. After the butterfly museum of the 23rd we entertained Uncle David, Kasie, and Justin on Christmas Eve, opened presents on Christmas day, and went to Rocky Mountain National Park on the 26th. I’m tired! :)

At work today, I announced that I’m going to resign from NGDC. It’s been great to work there — the people are FABULOUS — but I need some time at home to recover. Hopefully, it’ll help!

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The Butterfly Pavillion

Today we spent the afternoon down at the Butterfly Pavillion. We spent a little while at the “bug exhibits” — an example of cockroaches, for instance, and a “Hold It Yourself” tarantula exhibit. (I passed, thank you very much!) Then, we hit the butterfly room … it’s a giant room, warmed and humidified to a nice, moisturized rain forest feel. There are butterflies all over the place! Unfortunately, the first picture I uploaded was of some trees, not a butterfly … more to come soon. Enjoy!

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The View Off Our Porch

The view off our porch this morning was beautiful …

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My Three-Month Anniversary

Yesterday was the three-month anniversary of my stroke. When I went to the doctor in January, he said that I would be “pretty much better by now” … that’s at least how I interpreted it. I feel far from it. I’m tired all the time and my aphasia is pretty bad when I’m tired. Granted, you probably wouldn’t notice — but I do! Grr.

We had the musical Christmas sermon at church on Sunday. We practiced all of Saturday morning for the event, and it sounded really good. Then, when we arrived at church early on Sunday morning to practice the flute (you didn’t think I was singing, did you?), we got a shock … the heat had been turned off overnight, and it was FREEZING! It was so cold that I COULD NOT get my flute in tune with the piano. We gave the concert in our coats. What an adventure. Despite the cold, the concert was excellent! I didn’t mess up once, and the choir sounded spectacular!

Today is my last day of therapy for the year, and tomorrow Mom and Dad Brantley are coming to visit … yay!

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My MTHFR Mutation

I had another appointment with Dr. Jenny Fox, my hematologist, today. She gave me the results of my TEE (which I already knew were negative) and my blood work — and she FOUND SOMETHING! However, as you’ll soon see, the results are weird and nothing is conclusive.

I’ve got a homozygous MTHFR mutation — one copy of C677T and one of A1298C. (I don’t know what ANY of this means, but whatever!) This gives you a higher risk of stroke by raising your level of homocystein (a protein which does something related to clotting, but I don’t know what). So, ordinarily, I would have a high risk of stroke. How high? I’ve got no idea.

Here’s the catch, though — the doctors tested my blood for homocystein in the ER, and I had a LOW level of it. Apparantley, there isn’t much research on this — if you’ve got the mutation, but you don’t have a resulting high level of homocystein, doctors don’t know how this affects your chances of a stroke. Fortunately, the remedy for the genetic disorder is quite simple and benign– you take a cocktail of vitamins (folic acid and B-something-or-other). The doctor prescribed some pills for me to take.

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A Little Bit of Housework

I didn’t sleep very well last night, so I went to work and then came home and crashed — for two and a half hours. Yuck! Fortunately, when I woke up, I felt quite good.

I had the energy to make a good dinner tonight — stir-fried shrimp. It turned out pretty good, but I think I prefer “Sesame Oil a la Jen Yu” to this kind made with rice vinegar. Still, I was proud of it.

Then I cleaned up the house (again) … my goal was to see the horizontal surfaces (kitchen counters, dining room table), and you can *almost* do it. I also got my Christmas presents ready to mail … yay!

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I’m OK, But Thank you!

For those of you who are worried, I’m not depressed :) I’m frustred sometimes, and REALLY frustrated other times — but not too often. However, Jen brought up some really good points, and I thought it’d be a good time to share my thoughts on them. I’m ok — I promise!

1. It might help to talk with a counselor.

Amen to that! I have two really good counselors — Jean, my occupational therapist, and Melissa, my speech therapist. They are excellent. I’ve cried in their offices, been frustrated, re-learned things … they are really wonderful. Moreover, they’re looking for signs of depression. I told them about having trouble sleeping in the morning — waking up an hour and a half early, exhausted, but worried about “stuff”. I was worried that it was a sign of depression. Jean said that she was keeping an eye out for depression, but that I was fine. (Whew!) It’s nice to know that somebody’s checking up on you without you even realizing it.

2. Maybe for now, you should stop using the “before� you as your benchmark.

That’s probably true. It’s tough, though … I want to keep the “before” me in mind as a goal. I’d like to have a job that a pre-stroke person could have, for instance. Melissa suggested I read geology articles like I used to so that I get to the point where I CAN read them. I know it’s not going to happen tomorrow, though.

3. Are you still getting exercise? I don’t mean going out and running a 5K, but be sure to walk.

Yes! Jean has been great about helping me find exercise to do. I’m trying to walk every day, different amounts every day. Jean says that this will keep my metabolism fast — I’ve gained weight since the stroke, and I don’t want to get plump as a pumpkin. I’d rather be going skiing or snowshoeing (well, I may be snowshoeing when we get dumped on!), but walking will work, and the dogs like it. Also, for when the weather’s really bad, I’ve got a couple of DVDs (Pilates and Yoga) that I can do inside. Exercise is good.

4. Nutrition: Be sure to drink plenty of liquids and eat plenty of fruits, vegetables, and whole grains. Fish is good for the brain.

Interestingly, the diet for stroke patients is, conveniently, lots of protein. I eat a peanut butter muffin or eggs for breakfast, steak/pork chops/some other kind of meat for dinner, and leftovers for lunch. I drink milk all the time. I’ve started taking protein vitamins which contain fish guts or something equally disgusting, but are rich in protein. Fruits, veggies, and whole grains — I’m working on those :)

5. Brainrot: Instead of vegging in front of the TV, I’d recommend a conversation with friends/family.

I’ve got to disagree with you on this one. Perhaps watching TV isn’t the best thing to do, but if I did anything I’d go DOWN in activity level — I’d fall asleep. (I haven’t been doing that because I have trouble sleeping — it takes me FOREVER to fall asleep!) Having a conversation is difficult, at least for me. I mess up words when I’m tired. (The latest of those came tonight, when I professed to Ben, “If you’ll grill the pork chops, I’ll make some potion on the stove.” Potion? Where did I pull that from?) I know that when I’m with family or close friends I don’t have to worry about it, but it does make conversation more difficult. I’d rather just sleep or watch TV when I’m tired and be wide awake when I want to be awake.

I suspect that I’ve been tired because of the anesthesia. My tiredness all “felt” the same. Interestingly, because I was tired, I got permission to work from home yesterday — and I had one of the most productive days ever! I was able to break up my work schedule: 2 1/2 hours in the morning, then an hour and a half eating lunch and dozing. When I woke back up, I felt great! I put in another 2 1/2 hours! I’m going to mention this to my boss; I’d love to work from home on a more regular basis.

Thanks for all your comments! :)

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